Developing a Congenital Heart Assessment Tool Mobile Application
Babies born with complex congenital heart disease (e.g. half a working heart) have their first stage of cardiac surgery in the first few days after birth. These babies are very fragile during the first year of life. The interstage period between the first and second stage of surgery is a challenging time. Many parents take their babies home during this time but worry that they will not know what to do or who to contact for advice if their baby deteriorates suddenly. This novel parental early warning tool (the first of its kind in the UK) helps parents to articulate their worries and concerns to HCPs, initiating timely intervention and thereby improving patient safety, quality of care and patient outcomes.
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